患有末期血液恶性瘤的患者的经验:从约旦的角度来看,一个现象学研究
Mohammad M Alnaeem1, Anas Shehadeh2, Abdulqadir J Nashwan3
1Palliative Care and Pain Management Program, School of Nursing, Al-Zaytoonah University of Jordan, Airport Street, 11733, Amman, Jordan.
BMC palliative care
|February 9, 2024
概括
患有晚期血性恶性瘤的患者面临严重的疼痛和痛苦,通常依靠精神应对机制. 他们的需求需要更多的认可和整体照顾,以提高尊严和福祉.
科学领域:
- 血液学 血液学 血液学
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 定性研究是指质量研究.
背景情况:
- 血液性恶性瘤带来了巨大的身体和心理挑战,特别是在中低收入国家.
- 对息治疗的获取有限影响了绝大多数 (84%) 末期患者.
- 了解患者的体验对于改善终身护理至关重要.
研究的目的:
- 探索患有晚期血液性恶性瘤的成年患者的观点.
- 了解他们未得到满足的需求和在疾病末期阶段的经历.
主要方法:
- 使用现象学方法进行定性解释设计.
- 与十名参与者 (49-65岁) 进行了深入的半结构面试.
主要成果:
- 两个主要主题出现了:"疼痛,痛苦和痛苦"和"精神应对".
- 参与者经历了严重的身体和情绪疼痛,痛苦和痛苦.
- 精神上的应对涉及宗教实践,社会支持和基于信仰的安慰.
结论:
- 末期血性恶性瘤患者忍受深刻的疼痛,痛苦和精神上的痛苦.
- 他们的经历往往被忽视,导致尊严丧失.
- 灵性是主要的应对资源;整体的医疗保健方法是必不可少的.
相关概念视频
Kubler Ross's Stages of Dying
71
Elisabeth Kübler-Ross significantly advanced psychology's understanding of the process of dying with her influential book, On Death and Dying (1969). She focused on studying terminally ill individuals and outlined five stages commonly experienced when coping with death: denial, anger, bargaining, depression, and acceptance.
In denial, individuals reject the reality of their condition, often thinking, "This isn't true; I feel fine," as a way to protect themselves from...
In denial, individuals reject the reality of their condition, often thinking, "This isn't true; I feel fine," as a way to protect themselves from...
71
Nursing Ethical Principles II
975
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
975
Ethical Issues
963
Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
Ethical Concerns in Healthcare:
963
Bone Marrow Sampling and Transplants
331
Bone marrow transplant is a potential cure for several diseases, including cancer and specific genetic disorders. Notably, this procedure is applicable for patients suffering from aplastic anemia, certain types of leukemia, severe combined immunodeficiency disease (SCID), Hodgkin's disease, non-Hodgkin's lymphoma, multiple myeloma, thalassemia, sickle-cell disease, and certain cancers.
The transplant begins with high doses of chemotherapy and radiation treatment, which aim to destroy...
The transplant begins with high doses of chemotherapy and radiation treatment, which aim to destroy...
331
Continuing Care
1.5K
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.5K
Cancer Survival Analysis
346
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...
346


