在家庭初级保健中照顾护理人员和患有痴呆症的人:干预性临床试验的协议
Maimouna Sy1, Ayush Thacker2, Orla C Sheehan3,4
1Center for Aging and Serious Illness, Department of Palliative Care and Geriatric Medicine, Massachusetts General Hospital, Boston, MA, USA. masy@mgh.harvard.edu.
这项研究旨在开发和测试一个基于家庭的痴呆症护理干预措施,用于家庭痴呆症患者及其照顾者. 目标是改善生活质量和福利,为这个服务不足的人群.
科学领域:
- 老年学和痴呆症护理
- 家庭初级保健 (HBPC) 模式
- 护理人员支持干预措施 护理人员支持干预
背景情况:
- 家庭老年人,人口不断增长,患痴呆症的流行率很高 (约1. 50%) 的比例.
- 现有的痴呆症护理模式并不适合家庭初级保健 (HBPC) 设置.
- 缺乏证据表明,特别是在HBPC中进行痴呆症干预.
研究的目的:
- 开发一种新的以HBPC为中心的痴呆症护理干预措施.
- 测试这种干预在HBPC实践中的可行性和可接受性.
- 改善生活质量和生活在家中的痴呆症患者 (PLWD) 和他们的护理人员的福祉.
主要方法:
- 在两个地点 (东南,夏威夷) 与护理人员和HBPC临床医生组成的定性焦点小组,以改进干预.
- 一个开放的试点试验,涉及多达50名患者/护理人员在两个HBPC实践中的二合一.
- 结果指标包括可行性,可接受性,护理人员报告的结果 (压力,幸福感) 和患者的生活质量.
主要成果:
- 焦点小组的初步反将为干预改进提供信息.
- 试点试验数据将评估实施,招聘和干预参与的可行性.
- 关键结果将包括护理人员参与,实践整合,患者/护理人员满意度和护理人员幸福感.
结论:
- 可行性和可接受性测试是调整痴呆症护理模式适应HBPC的关键第一步.
- 成功实施为未来更大规模的干预试验提供了基础.
- 最终目标是在HBPC实践中传播有效,全面的痴呆症护理干预措施.
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