女性自我管理与子宫内膜异位症相关的失调症:一种定性研究
A Fuchsia Howard1, Heather Noga2, Mary T Kelly3
1School of Nursing, University of British Columbia, Vancouver, British Columbia, Canada; Women's Health Research Institute, British Columbia Women's Hospital & Health Centre, Vancouver, British Columbia, Canada.
The journal of pain
|February 10, 2024
概括
患有子宫内膜异位症的女性会随着时间的推移,为痛苦的性行为制定自我管理策略. 这一旅程涉及了解病情,寻求帮助,并学习应对机制,如心理准备和伙伴沟通.
科学领域:
- 生殖健康 生殖健康
- 质量健康研究 质量健康研究
- 患者自我管理
背景情况:
- 子宫内膜异位症影响50-70%的个体,通常会导致失精症 (疼痛性行为).
- 医疗治疗有局限性,这使得自我管理对于症状控制至关重要.
- 关于专门针对子宫内膜异位症相关的疼痛性行为的自我管理策略的知识有限.
研究的目的:
- 为了探索与子宫内膜异位症相关的痛苦性行为的个人经历.
- 识别和描述由子宫内膜异位症妇女开发的自我管理策略.
- 为了告知支持性护理干预措施的发展,为失联症.
主要方法:
- 定性解释性描述方法.
- 对面试数据进行主题分析和持续的比较分析.
- 采访20名被诊断患有子宫内膜异位症的妇女 (18至44岁).
主要成果:
- 参与者描述了管理痛苦性行为的四个阶段旅程:正常化,情绪/认知转变,寻求理解和战略开发.
- 自主管理策略随着时间的推移而演变,包括心理/身体准备和伙伴沟通.
- 在制定这些战略时,社会支持和共同的经验至关重要.
结论:
- 与子宫内膜异位症相关的疼痛性行为的自我管理是一个渐进的,不断发展的过程.
- 干预措施应侧重于教育,打击正常化,改善多学科护理,加强沟通.
- 需要进一步的研究来支持患有失联症的个体.
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