共同设计EMBED-Care框架作为一种干预措施,以加强痴呆症患者和从业人员的共同决策,包括整体评估,与临床决策支持工具相结合:定性研究
Jesutofunmi Aworinde1, Catherine J Evans1,2, Juliet Gillam1
1Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.
概括
这项研究共同设计了EMBED-Care框架,以改善痴呆症患者的共享决策. 该框架增强了沟通,并通过专注于个人的需求和偏好来个性化护理.
科学领域:
- 老年学是指老年学的学科.
- 痴呆症护理 痴呆症护理 痴呆症护理
- 医疗保健服务研究 医疗服务研究
背景情况:
- 共享决策 (SDM) 对于将痴呆症护理与个人偏好保持一致至关重要.
- 痴呆症患者在护理决策中的参与不一致.
- 需要有结构的方法来加强痴呆症护理中的SDM.
研究的目的:
- 共同设计EMBED-Care框架,以改善痴呆症患者和从业人员之间的共享决策 (SDM).
- 通过改进SDM,加强以人为中心的整体息性痴呆症护理.
主要方法:
- 一个理论和证据驱动的共同设计研究,使用代研讨会.
- 由SDM的理论模型和EMBED-Care框架提供信息.
- 利用医学研究理事会 (MRC) 对复杂干预的指导.
主要成果:
- 五个共同设计研讨会涉及18名痴呆症患者和36名从业人员.
- 出现了三个关键主题:"了解人与个性化护理"",参与并考虑所有参与者的观点"和"培训和支持活动".
- 该干预旨在增加优先事项和选择的共享知识,并管理分歧.
结论:
- 该EMBED-Care框架是共同设计的,以加强痴呆症护理中的SDM.
- 实践者需要面对面的培训,对敏感的对话进行干预和沟通技巧.
- 一个逻辑模型说明了干预的预期功能.
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