不方便的抽样:社区参与和恢复性正义方法对遗传咨询研究学生的研究
Kimberly Zayhowski1,2, Emily Glanton2,3, Ian M MacFarlane2
1Department of Obstetrics and Gynecology, Boston University Chobanian & Avedisian School of Medicine, Boston, Massachusetts, USA.
Journal of genetic counseling
|February 13, 2024
概括
这项研究倡导在遗传咨询学生项目中进行社区参与的研究和恢复性正义. 这种方法通过集中患者的声音和多样化的经验来增强包容性和公平性,超越了方便抽样.
科学领域:
- 遗传咨询 遗传咨询
- 生物伦理学生物伦理学
- 健康 公平 卫生 公平
背景情况:
- 遗传咨询研究是临床实践的基础.
- 学生的研究往往依赖于方便抽样,限制了不同的观点.
- 历史优生学意识形态需要一个更具包容性的研究方法.
研究的目的:
- 在遗传咨询研究中促进包容性和公平性.
- 倡导社区参与和赋权的研究方法.
- 将恢复性正义原则纳入遗传咨询学术工作中.
主要方法:
- 建议从方便抽样转向社区参与的研究.
- 强调与患者,家庭和社区的合作.
- 利用恢复性正义原则来解决系统性不平等问题.
主要成果:
- 社区参与的研究赋予患者权力,并放大多样化的声音.
- 这种方法促进了未来专业人士的同情心和文化响应能力.
- 它将遗传咨询转向更加以患者为中心和公正的实践.
结论:
- 结合社区参与的研究和恢复性正义,增强了遗传咨询奖学金.
- 这种范式转变使学生能够理解患者的需求和历史上的不公正.
- 在研究中建立真正的合作伙伴关系,可以带来更具包容性和公平性的遗传咨询专业.
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