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Updated: Jul 9, 2026

A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis ALS
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A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis ALS

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在轻链 (AL) 氨基粉症中开发和初步验证AL-PROfile患者报告的结果指标

Anita D'Souza1, Aniko Szabo2, Idayat Akinola1

  • 1Division of Hematology/Oncology, Medical College of Wisconsin, Milwaukee, Wisconsin, USA.

European journal of haematology
|February 13, 2024
PubMed
概括

该AL-PROfile证明了可接受的可靠性和有效性,用于评估系统性轻链氨基粉症患者报告的结果. 这种患者报告的结果衡量标准适用于该患者群体的临床使用.

关键词:
一个承诺,一个承诺.在这个过程中,PROs PROs.这是一个PRO-CTCAE.在SF-36中,我们可以看到SF-36.氨基化物 氨基化物与健康有关的生活质量.

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