多发性硬化症青少年的父母之间的幸福感:一项初步的纵向研究
Liat Hamama1, Yaira Hamama-Raz2, Keshet Lebowitz-Sokolover3
1Bob Shapell School of Social Work, Tel Aviv University, Tel Aviv, Israel.
Frontiers in psychology
|February 15, 2024
概括
在儿科发病多发性硬化症 (POMS) 中,父母的幸福感受到社会支持 (PSS) 和应对灵活性的影响. 增强的PSS可以改善应对机制,减少父母照顾患有POMS儿童的心理痛苦.
科学领域:
- 儿科神经学 儿科神经学
- 心理学 心理学 心理学
- 社会科学 社会科学 社会科学
背景情况:
- 儿科发病多发性硬化症 (POMS) 影响儿童的发育,并给父母带来巨大的情感,财务和身体负担.
- 2021年,以色列每10万儿童中POMS发病率为1.5,青少年的发病率更高 (4.5%).
- 患有POMS儿童的父母面临着影响他们整体福祉的多方面的挑战.
研究的目的:
- 在12个月内检查父母对生活满意度和心理痛苦的变化.
- 研究感知到的社会支持 (PSS) 的调解作用和父母幸福感的应对灵活性.
- 探索因果途径:PSS预测应对灵活性,这反过来又影响了父母的幸福感.
主要方法:
- 一项初步研究涉及36名在以色列一家三级儿童医院的POMS儿童的父母.
- 数据采集在三个时间点使用验证问卷:对生活满意度,Kessler的K6 (心理困扰),MSPSS (社会支持) 和PACT (应对灵活性).
- 采用多层次因果调解模型来分析变量之间的关系.
主要成果:
- 父母报告说,在12个月的时间里,他们感觉到社会支持,应对灵活性,生活满意度和心理痛苦的稳定水平.
- 母亲报告说,与父亲相比,他们感觉到来自朋友的社会支持更高.
- 在诊断后1个月,来自朋友的更强的社会支持预测了6个月的应对灵活性增加,这与12个月的心理痛苦减少有关.
结论:
- 感知到的社会支持和应对灵活性对于管理儿科发病多发性硬化症的父母的福祉至关重要.
- 这些发现突出了一个潜在的途径,即社会支持增强了应对能力,随后减轻了心理痛苦.
- 医疗保健专业人员在支持患有慢性儿科疾病的家庭时应考虑这些因素.
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