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Updated: Jul 3, 2025

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了解推动参与遗传研究的因素:患者,护理人员和亲属的观点

Emilia M Swietlik1,2, Michaela Fay3, Nicholas W Morrell1

  • 1Department of Medicine, The Victor Phillip Dahdaleh Heart and Lung Research Institute University of Cambridge Cambridge UK.

Pulmonary circulation
|February 16, 2024
PubMed
概括

遗传研究改善了对肺动脉高血压 (PAH) 的理解. 来自RAPID-PAH研究的患者反强调了需要个性化招聘和更好的沟通,以加强遗传研究交付和临床整合.

关键词:
遗传研究遗传研究获得知情同意的情况.参与的动机和障碍.肺动脉高血压 肺动脉高血压返回个体遗传结果的返回.

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