在沙特阿拉伯多发性硬化症患者中预期的耻辱感
Rahaf Hamood Albarraq1, Naseem Abdulmohi Alhujaili2, Ziyad Ibrahim Alshehri1
1Faculty of Medicine in Jeddah, King Abdulaziz University, Jeddah, Saudi Arabia.
Saudi journal of medicine & medical sciences
|February 16, 2024
概括
社会污名化对沙特阿拉伯的多发性硬化症 (MS) 患者产生重大影响,70.4%的患者经历了中度至严重的预期污名化. 关键预测因素包括年龄,性别,婚姻状况,教育,MS发作和先前的心理健康诊断.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 公共卫生 公共卫生
背景情况:
- 对于患有多发性硬化症 (MS) 的人来说,社会耻辱是一个重大挑战,它会对他们的生活质量产生负面影响.
- 在沙特阿拉伯,对MS患者预期的耻辱感的研究显著有限.
研究的目的:
- 评估沙特阿拉伯MS患者预期耻辱的流行情况.
- 为了确定预测该患者群体中预期的耻辱的因素.
主要方法:
- 一项涉及222名在沙特阿拉伯被诊断患有多发性硬化症的成年患者的横截面研究.
- 数据收集包括社会人口统计和临床变量,以及阿拉伯版本的慢性疾病预期污名度量表.
主要成果:
- 很大一部分 (70.4%) 的MS患者报告中度至重度的预期耻辱感.
- 工作同事是预期耻辱的最高来源 (平均得分为2.96/5).
- 预期的耻辱的重要预测因素包括年龄,性别,婚姻状况,教育水平,最近的MS复发,以及精神疾病史.
结论:
- 该研究强调了沙特阿拉伯多发性硬化症患者预期的耻辱的巨大负担.
- 显然需要制定有针对性的干预措施和支持计划,以减轻这一群体中预期的耻辱感.
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