神经分歧的参与式翻译科学:注意力缺陷/多动障碍和自闭症研究模型
Edmund J S Sonuga-Barke1, Susie Chandler1, Steve Lukito1
1School of Academic Psychiatry, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
The British journal of psychiatry : the journal of mental science
|February 16, 2024
概括
患有自闭症和注意力缺陷多动症 (ADHD) 的年轻人现在是RE-STAR计划的共同研究人员. 这种参与模式丰富了翻译科学,并改善了对神经发育条件和心理健康的理解.
科学领域:
- 神经科学是一个神经科学.
- 精神病学是一个精神病学.
- 发展心理学 发展心理学
背景情况:
- 越来越多的人呼吁神经分化个体参与神经发育研究.
- 目前的参与往往局限于外部患者和公众参与 (PPI) 面板.
- RE-STAR计划引入了一种新的参与式翻译研究模式.
研究的目的:
- 概述RE-STAR参与模式的基本原则.
- 描述实际实施和好处.
- 强调青年研究员小组 (Y-RPers) 的核心作用.
主要方法:
- 一个为期24个月的共同意向过程,将Y-RPers作为共同研究人员整合在一起.
- 学术研究人员,Y-RPers和利益相关者之间的合作讨论.
- 参与模型的代改进.
主要成果:
- 关于将多动症和/或自闭症的年轻人纳入翻译研究的指导.
- 参与Y-RPer的具体理论,方法和分析好处.
- 证明了丰富翻译科学的潜力.
结论:
- RE-STAR在增强自闭症,多动症和精神健康的翻译科学方面表现有前途.
- 该模型有可能适应其他神经分歧和心理健康状况.
- 强调了共同研究人员参与理解复杂条件的价值.
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