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关于在辅助生殖的生物伦理学中使用"不值得活的生命"的批判性观点
1PhD Researcher, URPP Human Reproduction Reloaded, High-Risk Sub-Project 4, Department of Philosophy, University of Zurich, Zollikerstrasse 115, 8008, Zurich, Switzerland. agnes.kandlbinder@uzh.ch.
Medicine, health care, and philosophy
|February 16, 2024
概括
生命不值得生活 (LNWL) 概念对于强制使用PGD和GGE等遗传技术是不可靠的. 生命初期的生物伦理需要包容性的方法,而不是基于不确定的预测的职责.
科学领域:
- 生物伦理学生物伦理学
- 生殖伦理学 生殖伦理学
- 关于残疾人的研究.
背景情况:
- "生命不值得活着" (LNWL) 的概念在生命开始的生物伦理学中经常被引用.
- 使用LNWL论点来支持强制使用植入前遗传诊断 (PGD) 和生殖系基因组编辑 (GGE).
- 现有的生物伦理框架在生命早期对LNWL的客观和主观评估方面扎.
研究的目的:
- 在PGD和GGE的论点中批判性地分析LNWL概念的应用.
- 在生命开始的背景下评估客观和主观LNWL概念化的可靠性.
- 探索对生殖自由和残疾人的包容性的伦理影响.
主要方法:
- 在生物伦理学文献中对LNWL和相关术语的概念分析.
- 基于LNWL的PGD/GGE的论点的审查.
- 批评LNWL话语的案例范例和社会政治层面.
主要成果:
- 客观的LNWL概念化对于建立关于PGD/GGE的道德义务来说过于不可靠.
- 主观的LNWL框架在生命开始时是无法访问的,因为没有主体存在.
- 概念和社会政治问题困扰着LNWL范例的使用.
结论:
- 对PGD/GGE的道德要求不能从LNWL概念中得出,因为缺乏可靠的,强有力的理由.
- 预测未来的幸福感可能是允许的,但不是道德上的要求.
- 生命初期的生物伦理学必须在基因技术的辩论中积极纳入残疾人的观点.
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