患有类风湿性关节炎的患者如何看待他们的自我护理和自我护理支持? 一个混合方法研究研究
Heleen Westland1, Stefan Kuiper1, Cheryl van den Bovenkamp2
1Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, the Netherlands.
患有类风湿性关节炎 (RA) 的患者通过各种自我护理活动和症状控制策略有效地管理他们的病情. 定制支持对于提高他们的生活质量至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 自我照顾管理 管理 自我照顾
- 患者支持 患者支持
背景情况:
- 类风湿性关节炎 (RA) 显著影响日常生活,需要有效的自我护理策略.
- 了解患者需求对于优化门诊机构的自我护理支持至关重要.
研究的目的:
- 探索RA患者的自我护理实践,需求和偏好,以获得针对性支持.
- 确定以患者为中心的方法,以改善RA管理中的自我护理.
主要方法:
- 顺序解释混合方法设计.
- 利用慢性疾病自理库存,焦点小组和半结构化访谈.
- 包括107名患者进行问卷调查和17名参与者 (患者和医疗保健专业人员) 进行定性数据收集.
主要成果:
- 患者表现出足够的自我护理,采用策略来管理RA症状并保持健康.
- 一个关键的主题是患者渴望超越诊断后的生活,重点关注身体活动,药物管理和饮食.
- 患者利用"身体倾听"来治疗症状,并寻求实际/情绪支持和可靠的信息.
结论:
- RA 患者进行充分的自我护理,利用各种活动和策略来管理症状并过上自己的生活.
- 量身定制的自我护理支持,包括实际/情感援助和可信的信息,对于管理RA和保持生活质量至关重要.
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