关于互联网使用和对黑人前列腺癌患者的护理影响的定性研究
Stacy Loeb1,2, Tatiana Sanchez Nolasco1, Nataliya Byrne1
1New York University Langone Health, New York, NY, USA.
概括
患有前列腺癌 (PCa) 的黑人男性通常使用互联网获取信息. 虽然它可以增强决策能力,但质量差或过度使用可能会增加焦虑并对护理产生负面影响.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 患者体验 患者体验
背景情况:
- 黑人男性面临更高的前列腺癌 (PCa) 风险和更差的结果.
- 互联网对于健康信息的使用很普遍,但它对PCa患者,特别是黑人男性的影响未得到充分探索.
- 更高的决策遗憾与PCa患者在互联网上搜索信息有关.
研究的目的:
- 探索黑人患者对使用互联网进行前列腺癌 (PCa) 护理的观点.
- 了解在线信息对PCa患者决策和福祉的感知影响.
主要方法:
- 七个虚拟焦点小组在2022-2023年期间与22名被诊断为前列腺癌 (PCa) 的黑人患者进行了交流.
- 两位独立研究人员使用常数比较方法分析了焦点组的成绩单.
- 定性分析探讨了与在线信息搜索及其影响相关的主题.
主要成果:
- 参与者在整个前列腺癌 (PCa) 旅程中经常使用在线资源,需求随着时间的推移而演变.
- 家庭成员积极协助在线信息搜索;互联网使用发生在医疗预约前后.
- 益处包括赋权和减少焦虑,但挑战涉及信息过载,质量评估和潜在的过度使用,导致焦虑和睡眠丧失.
结论:
- 互联网为前列腺癌 (PCa) 患者提供了潜在的好处,通过补充医疗保健提供者信息和赋权决策.
- 然而,与质量差,不代表性的在线内容或过度使用相关的风险可能会对患者的结果和幸福感产生负面影响.
- 仔细导航和对在线资源的批判性评估对于最大限度地提高前列腺癌护理的好处和减轻伤害至关重要.
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