教育资源,以支持患有帕索姆尼亚症的患者
Courtney D Molina1, Adreanne Rivera2, Alon Y Avidan1
1Department of Neurology, UCLA, David Geffen School of Medicine at UCLA, 710 Westwood Boulevard, RNRC, C153, Mail Code 176919, Los Angeles, CA 90095-1769, USA.
Sleep medicine clinics
|February 17, 2024
概括
这本指南提供了可访问的在线资源,用于parasomnias,如睡眠行走和夜间恐怖. 通过验证的信息帮助在病情管理和与医疗保健提供者合作中赋予患者权力.
科学领域:
- 神经学 神经学
- 睡眠医学 睡眠医学
- 患者教育 患者教育
背景情况:
- 睡眠障碍是一种异常的睡眠行为,比如梦中行走和夜间恐怖.
- 患者面临的挑战是找到有关这些疾病的可靠在线信息.
- 缺乏可访问,验证的资源阻碍了患者参与护理.
研究的目的:
- 为了减少患者在寻找可信的信息的负担.
- 编译和描述可访问的在线资源,以获取有关睡眠障碍的信息.
- 为患者提供经过验证的信息,以更好地管理病情.
主要方法:
- 在线资源的文献综述与帕萨姆尼亚斯相关.
- 编制可访问和经过临床验证的资源清单.
- 详细描述每个资源的内容和可访问性.
主要成果:
- 这里列出了一份针对异常睡眠症的在线资源的精选列表.
- 每个资源都描述了它的可访问性和内容.
- 增加患者获得验证信息的机会.
结论:
- 提供可访问的,经过验证的在线资源有助于赋予患有偏睡症的患者权力.
- 赋权患者可以积极管理他们的情况,并与医疗保健提供者合作.
- 提高患者参与度可以改善临床管理和参与研究.
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