建立一个基于证据的多层次体系,为患有神经障碍的成年人提供优质的残疾支持
Megan Topping1,2, Jacinta Douglas1,2, Di Winkler1,2
1Living with Disability Research Centre, La Trobe University, Melbourne, Australia.
Disability and rehabilitation
|February 19, 2024
概括
对于患有神经障碍的成年人来说,优质的残疾支持最好通过生活经验来理解. 真正的选择和个人代理对于有效的支持至关重要,在服务设计中赋予个人权力.
科学领域:
- 关于残疾人的研究.
- 康复医学 康复医学 康复医学
- 社会科学 社会科学 社会科学
背景情况:
- 获得神经障碍的个人需要优质的支持服务.
- 现有的残疾服务往往缺乏最终用户的足够投入.
- 对生活经验的有限理解阻碍了开发有效的支持.
研究的目的:
- 为了全面了解获得神经障碍的成年人质量支持.
- 将这种理解建立在个人,支持工作者和其他亲密的人的生活经验的基础上.
- 开发基于用户观点的质量支持的整体模型.
主要方法:
- 采用了一个构造主义的基于理论的方法.
- 对12名患有神经障碍的成年人,12名支持工作者和10名亲密人士进行了个别采访.
- 来自每个角度的数据被独立分析,然后合并以创建一个全面的模型.
主要成果:
- 开发了一种质量支持模型,整合了关系,能力,团队动态,提供者实践和部门考虑的主题.
- 主要发现强调承认个人专业知识,有效的支持关系,有能力的团队和部门问责制.
- 真正的选择和个人代理被确定为质量支持的关键组成部分.
结论:
- 通过集中生活经验,研究结果支持残疾人权利和个性化资金原则.
- 优先考虑真正的选择和个人赋权对于改善残疾人支持至关重要.
- 这项研究为改善残疾人支持领域的实践和政策提供了有价值的见解.
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