间歇性肺病的远程肺康复:使用基于经验的代码设计开发模型
Lisa Jane Brighton1,2, Nannette Spain3, Jose Gonzalez-Nieto3
1Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.
BMJ open respiratory research
|February 20, 2024
概括
针对间歇性肺病 (ILD) 的新远程肺康复 (PR) 计划与患者,家属和医疗保健专业人员共同设计. 这种协作方法确保该计划满足ILD患者改善可访问性的特定需求.
科学领域:
- 肺部医学 肺部医学
- 康复科学 康复科学 康复科学
- 以患者为中心的护理
背景情况:
- 远程肺部康复 (PR) 可以提高患有慢性呼吸系统疾病的患者的治疗机会.
- 现有的PR研究主要集中在慢性肺炎上,缺少对其他疾病如间歇性肺病 (ILD) 的编码设计.
- 需要在患者,照顾者和医疗保健专业人员的投入下开发的公关干预措施.
研究的目的:
- 为患有ILD的个人共同设计一个远程公关程序.
- 利用基于经验的编码设计 (EBCD) 涉及患者,护理人员和医疗保健专业人员.
- 为未来的测试准备一个代码设计的公关计划.
主要方法:
- 雇佣的EBCD,包括采访,利益相关者研讨会和代码设计会议.
- 从视频录制的采访中开发了一个20分钟的电影,以获得反.
- 利用利益相关者的反活动和最终的代码设计研讨会来完成该计划.
主要成果:
- 采访包括10名ILD患者,4名护理人员和7名医疗保健专业人员.
- 代码设计研讨会涉及14名服务用户和11名医疗保健专业人员.
- 最后的计划是以小组为基础的,监督的视频会议交付,针对ILD安全性,同行支持和教育,包括息护理标志.
结论:
- 患者,护理人员和多学科团队成功编写了ILD的远程公关计划.
- 未来的研究应该评估这种新型干预措施的可行性和可接受性.
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