识别慢性皮肤疾病的核心结果领域,使用最佳-最差缩放方法
Ali Shields1,2, Frances K Barg3, Wendy Smith Begolka4
1Drexel University College of Medicine, Philadelphia, Pennsylvania.
JAMA dermatology
|February 21, 2024
概括
患者报告的结果措施 (PROM) 可以改善皮肤疾病的护理. 这项研究确定了PROMIS关键领域,如身体形象和,对于患有慢性皮肤疾病的患者来说最有意义.
科学领域:
- 皮肤病学 皮肤病学
- 患者报告的结果
- 健康 结果 研究 研究 结果
背景情况:
- 患者报告结果措施 (PROMs) 有潜力提高皮肤病患者的护理质量,但其常规实施是有限的.
- 患者报告结果测量信息系统 (PROMIS) 有关慢性皮肤病的相关领域,但它们的具体用途尚不清楚.
研究的目的:
- 为患有慢性皮肤疾病的个人确定最有意义的PROMIS域.
- 开发一个能准确反映慢性皮肤病患者生活经验的PROMIS个人资料.
主要方法:
- 这是一项采用互联网调查的横截面研究,该调查通过Prolific Platform,ResearchMatch和国家牛皮基金会向美国成年人进行.
- 采用了最佳-最差的缩放练习,参与者对预先定义的PROMIS领域的重要性进行了排名,这些领域与慢性皮肤病相关.
- 数据收集发生在2022年12月至2023年6月之间,并于2023年6月进行分析.
主要成果:
- 在,牛皮和亚托邦皮肤炎患者群体中,高评级的PROMIS领域包括身体形象,外表和生活满意度.
- 特定于牛皮,和疼痛也非常显著.
- 对于亚托皮炎,是主要关注的问题,其次是生活满意度,外表,身体形象和疼痛.
结论:
- 身体形象,外表,生活满意度,和疼痛是慢性皮肤病患者的关键领域.
- 确定这些关键的PROMIS领域可以指导临床医生为患者选择相关措施.
- 这种方法可以为制定全面的PROMIS概况提供信息,以从患者的角度评估疾病严重程度和治疗疗效.
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