青春期面临生命威胁:关于癌症青少年和年轻成年人的挑战,应对和需求的定性研究
Carolin Wilharm1, Anne Pralong1, Mara Weiss1
1Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Kerpener Street 62, 50937, Cologne, Germany.
概括
患有癌症的青少年和年轻人面临着独特的生命威胁挑战. 医疗保健专业人员的诚实沟通和保证对于他们在可治愈阶段的应对和需求至关重要.
科学领域:
- 在瘤学瘤学.
- 心理社会瘤学
- 青少年和年轻人的医学 (AYA)
背景情况:
- 患有癌症的青少年和年轻人 (AYA) 有独特的心理社会需求.
- 对于AYA在治愈阶段如何应对危及生命的癌症,人们知之甚少.
研究的目的:
- 了解AYA面临危及生命的癌症的挑战,应对策略和需求.
- 了解他们对死亡率和治疗的经验.
主要方法:
- 对15名AYA (诊断时年龄在18-39岁之间) 的深入访谈进行了定性内容分析.
- 诊断后2-5年进行的采访,不包括接受治疗或怀疑复发的患者.
主要成果:
- AYAs突然面临死亡,通常是在经历同龄人的死亡之后.
- 对复发和死亡的恐惧,以及对身体的信心丧失,在治疗后仍然存在.
- 应对策略包括希望,避免,自我安抚,并将癌症视为一个机会. 母亲们把孩子的幸福放在首位.
结论:
- AYAs与老年患者分享一些应对机制,但面临着独特的挑战,例如对危及生命的疾病和父母责任缺乏经验.
- 根据个体需求量身定制的诚实,令人放心的沟通对于AYA在可治愈的癌症阶段至关重要.
- 需要进一步的研究来解决癌症患者的特殊需求.
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