患有卵巢癌的女性信息寻求和避免行为:采访研究
Yu Chi1, Vivian Hui2,3, Hannah Kunsak3
1School of Information Science, College of Communication and Information, University of Kentucky, Lexington, KY 40506, United States.
JAMIA open
|February 22, 2024
概括
许多卵巢癌 (OvCa) 患者避免寻求健康信息. 了解影响信息搜索和避免的因素对于改善OvCa疾病管理和患者支持至关重要.
科学领域:
- 在瘤学瘤学.
- 卫生沟通健康沟通
- 患者支持 患者支持
背景情况:
- 卵巢癌 (OvCa) 的有效疾病管理依赖于知情决策.
- 一些被诊断为OvCa的妇女不愿积极寻找相关的健康信息.
研究的目的:
- 调查影响OvCa患者及其护理人员信息搜索和信息回避行为的因素.
- 确定OvCa患者和护理人员使用的首选信息资源.
主要方法:
- 与20名参与者 (OvCa患者或他们的护理人员) 进行了深入采访.
- Deductive 和 Inductive 编码方法用于数据分析.
主要成果:
- 与积极的信息搜索行为相关的五个主题出现了.
- 为被动获取信息确定了五个主题.
- 四个主题描述了信息回避行为.
- 首选的信息来源包括卫生组织,政府资源和在线社会团体.
结论:
- 需要策略来鼓励OvCa患者寻求信息,而不是避免信息.
- 加强患者提供者沟通和社会支持网络对于有效获取信息至关重要.
- 这些发现对临床实践和政策产生影响,以改善OvCa.个人获得信息的机会.
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