个人数据存储健康和社会护理中的生态系统
Laura Carmichael1, Wendy Hall2, Michael Boniface1
1IT Innovation Centre Part of the Digital Health and Biomedical Engineering Research Group, School of Electronics and Computer Science, University of Southampton, Southampton, United Kingdom.
个人数据存储提供了一个以人为中心的方法来管理可穿戴设备等设备的健康数据. 这些安全的生态系统使个人能够控制他们的个人健康信息,以改善福祉和研究.
科学领域:
- 数字健康数字健康
- 医疗信息学 医疗信息学
- 个人数据管理 个人数据管理
背景情况:
- 越来越多的个人生成的健康数据来自可穿戴设备和监控设备.
- 在健康和社会护理数据利用中需要以人为本的方法.
- 对个人健康数据使用的个人控制和可见性有限.
研究的目的:
- 探索个人数据存储生态系统作为健康和社会护理中以人为中心的方法.
- 检查个人数据存储所带来的动机和机会.
- 确定与这些生态系统相关的研究和实施挑战.
主要方法:
- 个人数据存储生态系统的概念分析.
- 讨论动机,机遇和挑战.
- 审查与医疗保健中的个人数据管理相关的现有文献和概念.
主要成果:
- 个人数据存储可以为个人健康数据的自我管理和共享提供安全的数字空间.
- 这些生态系统增强了个人对其数据的控制,访问和可见性.
- 有机会通过数据共享来改善福祉,个人护理和研究.
结论:
- 个人数据存储是一个有希望的以个人为中心的健康和社会护理数据模型.
- 成功实施需要解决重大研究和实际挑战.
- 赋予个人数据控制权是释放个人健康数据潜力的关键.
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