患者和护理人员对亚托邦性皮炎旅程的看法
Steven R Feldman1, Alson Wai Ming Chan2, Alfred Ammoury3
1Department of Dermatology, Wake Forest University School of Medicine, Winston-Salem, NC, USA.
The Journal of dermatological treatment
|February 22, 2024
概括
患有亚托皮性皮炎 (AD) 的患者在症状管理和诊断方面面临挑战. 了解他们的旅程和偏好是改善整体疾病管理和护理的关键.
科学领域:
- 皮肤病学 皮肤病学
- 患者体验研究 研究研究
- 医疗保健服务研究 医疗服务研究
背景情况:
- 亚托匹性皮肤炎 (AD) 管理需要了解患者的旅程.
- 优化护理需要解决诊断和管理方面的挑战.
研究的目的:
- 探索患者和护理人员关于他们与阿托皮性皮肤炎 (AD) 经验的观点.
主要方法:
- 会议前的一项调查由中国,香港,爱尔兰,日本和黎巴嫩的31名患者和护理人员完成.
- 咨询委员会会议举行,讨论调查结果.
- 数据被描述性地分析.
主要成果:
- 关键的挑战包括诊断前的症状管理 (68%),突然发作复发 (68%) 和生活方式调整 (52%).
- 只有35%的人认为阿尔茨海默病得到了良好的管理,23%的人有一个明确的治疗计划,19%的人对疾病管理感到满意.
- 首选的是与医疗保健专业人员的合作关系.
结论:
- 对阿托皮性皮炎 (AD) 护理的整体方法必须包括患者和护理人员的见解.
- 解决患者体验中发现的差距可以提高AD管理和结果.
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