社交媒体塑造自闭症感知和身份认同
Ingjerd Skafle1,2, Elia Gabarron1,3, Anders Nordahl-Hansen1
1Østfold University College, Norway.
Autism : the international journal of research and practice
|February 23, 2024
概括
社交媒体为自闭症成年人提供有价值的自闭症信息,提供对身份和社区的见解. 然而,官方的健康页面往往是不够的,需要更具包容性的方法来创建内容.
科学领域:
- 神经发育障碍 神经发育障碍
- 数字健康数字健康
- 社会科学 社会科学 社会科学
背景情况:
- 关于自闭症患者如何通过社交媒体获取自闭症信息的研究有限.
- 自闭症成年人经常发现官方的卫生资源不足以满足他们的需求.
研究的目的:
- 探索自闭症成年人使用社交媒体获取与自闭症相关的信息的经验.
- 了解社交媒体对自闭症信息搜索的感知好处和缺点.
主要方法:
- 定性研究涉及采访12名自闭症成年人 (18-49岁).
- 探索社交媒体用于一般自闭症信息,身份和社区的使用.
主要成果:
- 参与者发现社交媒体对于自闭症信息是有价值的,尽管人们认为它不可靠.
- 确定了与自闭症身份和支持性在线社区相关的积极内容.
- 负面经验包括在某些在线空间进行激进的讨论和异化感.
结论:
- 社交媒体可以补充官方的自闭症信息,提供身份肯定和社区支持.
- 官方自闭症资源应纳入自闭症社区的投入,以提高内容的相关性和充分性.
- 需要为自闭症患者培养更具包容性和支持性的在线环境.
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