受癌症影响的人的经历:全球横截面调查协议
Julie Cayrol1,2,3, Claire E Wakefield4,5, André Ilbawi3
1The Royal Children's Hospital and Murdoch Children's Research Institute, Melbourne, Australia.
PloS one
|February 23, 2024
概括
这项研究解决了关于癌症的有限数据.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 心理社会研究 心理学研究
背景情况:
- 癌症诊断显著影响患者的身体,精神和财务福祉,以及他们的护理人员.
- 关于低收入和中等收入国家 (LMICs) 癌症患者和护理人员经验的数据显著缺乏.
- 对幸存者和家庭的长期影响,以及丧亲的家庭成员的观点,研究不足.
研究的目的:
- 描述癌症对患者,家庭和丧亲的心理社会和经济影响.
- 为了比较这些影响在高收入国家 (HICs) 和LMICs.
- 为公共卫生干预和癌症支持政策制定提供信息.
主要方法:
- 一项观察性,描述性,定量性研究,利用全球性,匿名的在线横截面调查.
- 参与者包括成年癌症患者,成年家庭成员/护理人员和丧亲家庭成员.
- 通过与癌症相关的组织,将采用方便和雪球采样.
主要成果:
- 对调查结果的定量分析将根据受访者群体,诊断时间,疾病和国家进行.
- 数据将匿名收集,以确保参与者的隐私.
- 结果将通过同行评审的出版物和科学会议传播.
结论:
- 这项研究旨在填补有关全球癌症经验的关键数据缺口,特别是在LMICs.
- 调查结果将指导制定有针对性的公共卫生干预和政策.
- 这项研究可能会刺激进一步研究受癌症影响的个体多方面的需求.
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