纤维肌痛患者的患者之旅:一个范围审查
Teresa Otón1, Loreto Carmona1, Javier Rivera2
1Instituto de Salud Musculoesquelética (InMusc), Madrid, Spain.
Reumatologia clinica
|February 23, 2024
概括
纤维肌痛 (FM) 严重影响患者和医疗保健系统,影响他们的社会生活. 改善FM患者的诊断和随访过程对于缓解这些挑战至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 患者体验研究 研究研究
- 卫生系统分析 卫生系统分析
背景情况:
- 纤维肌痛 (FM) 是一种慢性疾病,以广泛的疼痛为标志.
- 现有的研究主要针对FM诊断和治疗,不太关注患者体验和医疗互动.
研究的目的:
- 系统地审查和分析有关纤维肌痛患者旅程的现有证据.
- 该审查涵盖了从初始症状到诊断,治疗和持续护理的经验.
主要方法:
- 采用了一种全面的范围审查方法.
- 在Medline和Cochrane图书馆进行了关于FM和患者旅程研究的搜索.
- 使用演性主题分类来合成结果.
主要成果:
- 在定性综合中包含了54篇文章.
- 五个主要主题出现了:患者的旅程,医疗保健系统的挑战,医生与患者关系的复杂性,诊断的意义和治疗标准化的困难.
结论:
- 本次审查强调了纤维肌痛对患者,他们的社会支持系统和医疗保健基础设施的严重负面影响.
- 解决在 FM 患者的诊断和随访中发现的困难至关重要.
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