我们是问题吗? 呼吁采取行动,以应对机构挑战,让社区伙伴参与研究
Neha Hippalgaonkar1, Ryan Huu-Tuan Nguyen1,2, Eliza Brumer Cohn3
1Division of Hematology/Oncology, University of Illinois Chicago, Chicago, IL 60612, USA.
International journal of environmental research and public health
|February 24, 2024
概括
社区参与的研究 (CEnR) 提高了健康公平,但像人类参与保护 (HPP) 培训这样的制度障碍阻碍了伙伴关系. 本研究提供了一份指南,为社区合作伙伴简化HPP培训,减少障碍,加强研究合作.
科学领域:
- 公共卫生 公共卫生
- 健康 公平 研究 健康 公平 研究
- 基于社区的参与式研究
背景情况:
- 社区参与的研究 (CEnR) 对于解决健康差异和建立信任至关重要.
- 简介:CenR提高了研究结果,包括招聘,留住,干预的有效性和文化相关性.
- 机构政策,特别是人类参与保护 (HPP) 培训,往往会给社区合作伙伴带来障碍.
研究的目的:
- 突出因机构障碍而导致的CenR实施的挑战.
- 为社区合作伙伴量身定制的人类参与保护 (HPP) 培训提供指南.
- 减少机构障碍,改善社区合作伙伴对研究的参与.
主要方法:
- 在通过信息和教育促进研究机会 (FOR ME) 研究中利用了社区参与研究 (CEnR) 的原则.
- 确定了与社区合作伙伴的传统HPP培训相关的行政负担和时间限制.
- 开发了一份指南,包含多个HPP培训途径,以解决已识别的障碍.
主要成果:
- 社区合作伙伴在获得必要的人类参与保护 (HPP) 培训时面临着巨大的行政和时间负担.
- 现有的HPP培训协议并没有针对社区组织 (CBO) 合作伙伴进行优化.
- 在FOR ME研究中,对于其CBO合作伙伴提供HPP培训时遇到了困难.
结论:
- 学术和研究机构必须调整政策,以支持社区合作伙伴在CENR.
- 精简和可访问的HPP培训途径对于公平的研究伙伴关系至关重要.
- 实施针对HPP培训的定制指南可以最大限度地降低障碍,并促进社区对研究的更多参与.
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