患者优先考虑项目,以制定患者报告的皮肤病影响指标:全球Delphi研究
Nirohshah Trialonis-Suthakharan1, Rachael Pattinson2, Nasim Tahmasebi Gandomkari1
1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
Journal of the European Academy of Dermatology and Venereology : JEADV
|February 24, 2024
概括
患者的投入指导了患者报告的皮肤病影响 (PRIDD) 措施的发展. 这项研究优先考虑了PRIDD的项目,并创建了一个用于进一步测试的版本草案.
科学领域:
- 皮肤病学 皮肤病学
- 患者报告的结果
- 健康测量健康测量
背景情况:
- 全球皮肤病影响研究 (GRIDD) 项目正在开发患者报告的皮肤病影响 (PRIDD) 测量.
- PRIDD旨在量化皮肤病对患者生活的影响.
研究的目的:
- 为了在PRIDD措施中包含的项目上达成患者的共识.
- 优先考虑患者报告的皮肤病影响项目.
主要方法:
- 一个经过修改的,两轮的Delphi研究,涉及皮肤病患者的成年人.
- 从66个国家的1154名参与者的定量 (利克尔特尺度) 和定性 (自由文本) 数据分析.
- 调查包括6种语言的263个潜在影响项目.
主要成果:
- 共有1154名参与者,代表90种皮肤病.
- 基于共识值和定性反的项目精细化导致了PRIDD的第一份草案.
- 最初的PRIDD草案包括五个影响领域的27个项目.
结论:
- 德尔菲研究成功生成了一个PRIDD措施草案,准备用于心理测量评估.
- 定性和定量数据完善了皮肤病学患者影响的概念框架.
- PRIDD已经进行了试点测试,目前正在进行心理测量验证.
相关概念视频
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