探索消费者的动机和参与作为癌症研究伙伴的经验
Jamie L Waterland1, Cassandra Beer1, Rowan Forbes Shepherd1
1Department of Health Services Research and Implementation Science, Peter MacCallum Cancer Centre, Melbourne, VIC, Australia.
The patient
|February 24, 2024
概括
消费者参与癌症研究是由利他主义和个人利益驱动的. 关键的障碍包括消费者和研究人员之间的感知欣赏和有效沟通.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 癌症研究 癌症研究
- 患者和公众参与.
背景情况:
- 消费者参与提高了研究的质量和相关性.
- 实施消费者参与研究可能会带来挑战.
研究的目的:
- 探索消费者参与癌症研究的动机.
- 识别消费者与研究团队合作所面临的障碍.
主要方法:
- 与消费者进行了半结构化访谈.
- 用专题分析来分析采访数据.
- 参与者包括注册会员和那些新加入消费者伙伴关系的人.
主要成果:
- 参与的动机包括利他主义和个人利益.
- 障碍涉及消费者对研究人员赞赏的看法.
- 研究人员和消费者之间的有效沟通被认为至关重要.
结论:
- 澳大利亚的政策支持消费者参与研究.
- 评价和沟通对于成功实施战略至关重要.
- 专注于这些领域可以改善未来的癌症研究消费者伙伴关系.
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