患者电子材料可读性用于23种语言的无性皮肤炎:分析和皮肤病学家的影响
Tomasz Skrzypczak1, Anna Skrzypczak2, Jacek C Szepietowski3
1University Hospital in Wroclaw, Borowska 213, 50-556, Wroclaw, Poland.
Dermatology and therapy
|February 24, 2024
概括
网上关于亚托皮性皮肤炎 (AD) 的信息丰富,但患者很难理解. 提高这些健康资源的可读性对于明智的决策和患者教育至关重要.
科学领域:
- 皮肤病学和健康传播
背景情况:
- 患者越来越多地使用在线资源获取医疗信息,包括阿托皮性皮肤炎 (AD).
- 了解AD的复杂性对患者至关重要,尤其是在新的治疗方法出现时.
- 在线健康信息在患者和医生之间的共同决策中发挥着关键作用.
研究的目的:
- 评估有关亚托皮性皮肤炎 (AD) 的在线健康信息的可读性.
- 评估不同来源和语言如何影响对AD信息的理解.
主要方法:
- 在谷歌上用23种欧盟语言搜索了"atopic dermatitis",分析了每种语言的前50个以患者为中心的非广告文章.
- 分类文章来源为非营利性,在线商店,制药公司和皮肤病诊所.
- 使用LIX分数评估可读性.
主要成果:
- 评估了23种语言的615篇文章;整体平均Lix分数为56±8,表明理解非常困难.
- 在不同语言的可读性中发现了显著的差异 (P < 0.001).
- 来自非营利组织和制药公司的文章显示出最高的可读性 (P < 0.001).
结论:
- 尽管在网上有大量关于亚托皮炎的文章,但它们的可读性通常很低.
- 显著需要提高患者在线AD信息的清晰度和可访问性.
- 提高在线健康信息的可读性对于有效的患者-医生共享决策至关重要.
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