在科中以患者为中心的研究和创新
Anastasia Hughes1, Chandana Guha1, Amanda Sluiter1
1Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Advances in kidney disease and health
|February 25, 2024
概括
患者参与研究提高了相关性和结果. 让患者参与优先设定和研究设计,可以确保研究能够满足患者的需求,并改善护理.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 以患者为中心的护理
- 腎病學研究 腎病學研究
背景情况:
- 患者参与研究对于相关性至关重要,但经常被忽视.
- 研究议程经常是由专业人士推动的,而不是患者的优先事项.
- 从历史上看,以患者为中心的结果在研究中一直被忽视.
研究的目的:
- 概述患者参与研究的原则和策略.
- 引导患者参与研究的所有阶段,从优先设定到传播.
- 促进与患者确定的需求和价值观一致的研究.
主要方法:
- 对患者参与研究的原则的审查和综合.
- 确定参与患者优先设定,干预设计,结果选择和传播的策略.
- 强调参与,教育,赋权和社区建设.
主要成果:
- 患者参与提高了研究的相关性,招聘,保留和干预的吸收.
- 参与患者确保研究结果反映了患者报告的经验和功能状态.
- 在科中以患者为中心的研究改善了证据有效性和临床实践.
结论:
- 患者在整个研究周期中的参与推动了创新,并确保了资源分配与患者的优先事项保持一致.
- 实施参与和赋权等原则可以促进以患者为中心的护理进步.
- 系统的患者参与是改善健康结果和加强医疗保健政策的关键.
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