评估患者对结直肠癌治疗后的随访需求 - - 混合方法研究
Kelly R Voigt1, Esmee A de Bruijn1, Lissa Wullaert1
1Department of Surgical Oncology and Gastrointestinal Surgery, Erasmus MC Cancer Institute, Doctor Molewaterplein 40, 3015 GD, Rotterdam, The Netherlands.
概括
结肠直肠癌 (CRC) 患者需要更好的后续护理,突出需要心理支持,清晰的沟通和简化结果. 一个拟议的平台显示了患者对改善医疗服务的高度兴趣.
科学领域:
- 在瘤学瘤学.
- 患者护理 患者护理
- 医疗保健管理的管理
背景情况:
- 结肠直肠癌 (CRC) 患病率上升和医疗保健劳动力短缺在癌症护理的可获得性方面带来了挑战.
- "双重衰老现象"需要创新的,以患者为中心的解决方案,以实现可持续的癌症护理.
- 评估患者需求对于优化结直肠癌的随访护理至关重要.
研究的目的:
- 评估结直肠癌 (CRC) 患者的特定后续护理需求.
- 确定治疗后患者旅程改善的关键领域.
- 为制定以患者为中心的后续护理策略提供信息.
主要方法:
- 一种混合方法的方法,结合了定性 (焦点小组,采访) 和定量 (问卷) 的阶段.
- 定性数据分析以确定后续护理中的核心患者需求和主题.
- 定量调查,在更大的CRC患者队列中优先确定确定的需求.
主要成果:
- 六个主要主题出现,强调需要身体和心理支持,一个专门的联系人,和量身定制的信息.
- 患者优先考虑简化放射学结果和对生活质量问卷的个性化反.
- 针对患者需求的拟议数字平台引起了显著的兴趣,近70%的参与者表示愿意使用它.
结论:
- 结肠直肠癌 (CRC) 患者报告了改善其后续护理经验的重要机会.
- 研究结果为开发数字平台提供了基础,以满足CRC患者在随访期间的多样化和特定需求.
- 解决患者确定的需求可以导致更有效和更令人满意的治疗后护理途径.
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