在西班牙裔患者中使用MINDSET自我管理移动健康应用程序的经验:定性研究的结果
Refugio Sepulveda1, Jenny Chong2, Ross Shegog3
1University of Arizona, Department of Neurology, College of Medicine, Tucson, AZ; University of Arizona, Division of Public Health Practice & Translational Research, Mel & Enid Zuckerman College of Public Health, Phoenix, AZ.
Epilepsy & behavior : E&B
|February 27, 2024
概括
患有的西班牙裔患者发现MINDSET工具对管理他们的病情有益. 这种的自我管理干预改善了控制和生活质量,显示出积极的患者体验.
科学领域:
- 神经学 神经学
- 数字健康数字健康
- 定性研究是指质量研究.
背景情况:
- 自我管理 (ESM) 干预对患者健康至关重要.
- 电子技术和移动健康工具增强了慢性疾病的自我管理,并减少了健康差异.
- 双语管理信息和决策支持工具 (MINDSET) 在临床环境中证明了可行性和有效性.
研究的目的:
- 评估MINDSET工具作为ESM干预措施在患者西班牙裔个体中的用户体验.
- 收集洞察力,以改进未来关于症自我管理的干预研究.
主要方法:
- 使用定性描述 (QD) 框架来探索患者的体验.
- 来自更大的RCT的42名西班牙裔患者的有目的,基于标准的样本参加了半结构化采访.
- 参与者是患有的成人西班牙裔患者,会说西班牙语或英语,参加了一项随机对照试验.
主要成果:
- MINDSET干预产生了五个关键主题:对ESM的认识,与医疗保健提供者的沟通,对生活质量的影响,控制和乐观/代理.
- 参与者报告了使用MINDSET的积极经验,强调了它对自我管理的价值.
- 人口统计包括94%的墨西哥裔西班牙裔,平均年龄为39岁,53%的女性,54%的女性每月经历一次或多次发作.
结论:
- 作为一种有价值的ESM工具,MINDSET被拉美裔患者积极看待.
- 定性研究结果与母研究一致,证实了MINDSET在提高自主管理的有效性.
- 这项研究强调了像MINDSET这样的数字健康工具在支持不同患者群体的潜力.
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