在家照顾有医疗复杂性的儿童:综合性审查
David Geyer1, Judith A Vessey2
1William F. Connell School of Nursing, Boston College, MA, USA.
Journal of pediatric nursing
|February 27, 2024
概括
系统性医疗保健障碍,而不仅仅是疾病管理,显著增加了医疗复杂性 (CMC) 的孩子的父母的负担. 解决这些官僚差距对于护理人员的福祉至关重要.
科学领域:
- 医疗保健系统研究 医疗保健系统研究
- 护理人员负担研究
- 儿科护理 儿科护理
背景情况:
- 患有医疗复杂性 (CMC) 的儿童的家长照顾者经历了相当大的负担,通常归因于疾病管理压力因素.
- 医疗官僚机构中的系统性障碍越来越多地被认为是导致因素.
- 雷的官僚关怀理论 (BCT) 为理解这些系统影响提供了一个框架.
研究的目的:
- 检查官僚化的医疗保健系统的要素如何有助于家中生活的CMC的家长照顾者所面临的负担.
- 探讨父母护理人员负担与医疗保健官僚机构内的系统障碍之间的关系.
主要方法:
- 进行了对审核研究文章的综合性审查.
- 包括2014年以后发表的文章,重点是美国CMC的家长护理人员的经验.
- 一个PRISMA算法从1967年的初始搜索中识别出十个相关的文章.
主要成果:
- 父母照顾者的负担始终与各种官僚医疗保健要素中的障碍和差距有关.
- 确定的官僚元素包括社会文化,物理,政治,法律,经济,技术和教育方面.
- 这些系统性弱点阻碍了CMC的一致的护理服务,加剧了护理人员的负担.
结论:
- 医疗保健官僚机构的缺陷直接导致CMC的家长护理人员负担.
- 减轻护理人员负担需要有针对性的努力,以解决医疗保健系统中的系统性差距.
- 护士在通过临床实践,宣传和研究来解决这些差距方面发挥着至关重要的作用.
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