适应英国妇产临床信息系统进行观察性研究的实用性:POOL研究的经验
Fiona Lugg-Widger1, Christian Barlow1, Rebecca Cannings-John1
1Centre for Trials Research, Cardiff University, Neuadd Meirionnydd, Heath Park, Cardiff, CF14 4YS, UK.
International journal of population data science
|February 28, 2024
概括
这项研究使用常规临床数据评估了英国的水产安全性. 将产妇和新生儿记录联系起来证明是可行的,但需要仔细的数据治理和技术解决方案.
科学领域:
- 医学研究方法论医学研究方法论.
- 公共卫生监督是对公共卫生的监督.
- 在医疗保健中的数据科学.
背景情况:
- 常规的临床数据为观察性研究提供了宝贵的资源,特别是对于罕见的结果.
- 该POOL研究旨在通过利用孕产妇和新生儿临床数据,评估英国的水产安全.
- 本文详细介绍了该数据链接研究的设计,理由,设置和试点阶段.
研究的目的:
- 评估英国水产分娩的安全性.
- 展示一种用于增强现有的临床产妇数据库进行研究的新方法.
- 为了最大限度地利用常规收集的数据,同时最大限度地减少NHS工作人员的负担.
主要方法:
- 修改Euroking产妇信息系统,以包括研究特定的数据字段.
- 从参与的NHS网站提取数据,并将其与国家新生儿研究数据库联系起来.
- 使用单个NHS站点对数据提取,链接和清理过程进行试点.
主要成果:
- 在27个月内建立了26个NHS站点.
- 从24,000个产妇记录 (2015年1月至2019年3月) 中提取了数据.
- 取得了成功的匹配和连接产妇和新生儿记录,可接受的数据完整性主要结果.
结论:
- 修改现有的电子健康记录用于研究是可行的,但在技术上具有挑战性和耗时.
- 强有力的治理,培训和新流程对于数据质量和机密性至关重要.
- 这项研究展示了一种可行的,尽管复杂的方法,用于研究大规模的临床数据链接.
更多相关视频
06:05The Participant-Reported Implementation Update and Score PRIUS: A Novel Method for Capturing Implementation-Related Data Over Time
Published on: February 19, 2021
1.3K
09:33Visualizing Field Data Collection Procedures of Exposure and Biomarker Assessments for the Household Air Pollution Intervention Network Trial in India
Published on: December 23, 2022
2.2K
相关概念视频
Nursing Clinical Information System
777
Nursing Clinical Information System (NCIS)
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
777
Data Collection by Observations
12.0K
Data collection refers to a systematic way of obtaining, observing, measuring, and analyzing accurate information. Observational studies are one of the most widely used methods of data collection. It involves collecting data by observing the behavior and physical characteristics of a sample without making any modifications to the sample.
An astronomer viewing the motion and brightness of stars in the sky and recording the data is an example of observational data collection. A botanist recording...
An astronomer viewing the motion and brightness of stars in the sky and recording the data is an example of observational data collection. A botanist recording...
12.0K
Observational Studies
8.5K
Observational studies are a type of analytical study where researchers observe events without any interventions. In other words, the researcher does not influence the response variable or the experiment's outcome.
There are three types of observational studies – Prospective, retrospective, and cross-sectional.
Prospective Study
Prospective studies, also known as longitudinal or cohort studies, are carried out by collecting future data from groups sharing similar characteristics. One...
There are three types of observational studies – Prospective, retrospective, and cross-sectional.
Prospective Study
Prospective studies, also known as longitudinal or cohort studies, are carried out by collecting future data from groups sharing similar characteristics. One...
8.5K
Data Collection II
8.1K
The nursing history captures and records the patient's health status, so that a care plan evolves to meet the patient's individual needs. The nursing health history is a part of the initial assessment. A comprehensive history covers all health dimensions and plays a significant role in the assessment process. A comprehensive history includes the patient's biographical information, reasons for seeking health care, expectations, present and past health history, medications, and...
8.1K
Data Collection I
6.2K
Data collection gathers information needed to make accurate judgments about a patient's present condition. During a health history interview, subjective data is collected from the patient, their caregivers, or family members, and objective data is collected through observations and physical assessment. Patients are the primary source of subjective data. Thus information gathered from patients through interviews, observations, and physical examination is primary data. Secondary sources of...
6.2K
