老年新诊断患有急性髓性白血病的成年人治疗决策的经验:一种定性描述性研究
Daniel R Richardson1,2, Carl J Mhina3,4, Randall Teal5,6
1UNC Lineberger Comprehensive Cancer Center, Chapel Hill, NC, USA. daniel_richardson@med.unc.edu.
概括
患有急性髓性白血病 (AML) 的老年人在做治疗决策时感到压倒和没有准备. 需要进行干预,以改善共享决策和患者参与护理规划.
科学领域:
- 血液学 血液学 血液学
- 在瘤学瘤学.
- 老年病的医生 老年病的医生
背景情况:
- 对于患有急性髓性白血病 (AML) 的老年人来说,治疗决策是复杂的,并受到个人偏好的影响.
- 了解患者的体验对于改善共享决策和制定有针对性的干预措施至关重要.
研究的目的:
- 探索AML的老年人治疗决策的患者经验.
- 识别共同决策中的挑战,以加强临床护理和干预.
主要方法:
- 与新诊断的老年人 (≥60岁) 进行了深度访谈,他们患有AML及其照顾者.
- 使用定性主题分析来综合数字记录的采访结果.
主要成果:
- 六个主题出现了:患者感到压倒,无能为力,在决策中忙.
- 患者希望遵循瘤学家的建议,但平衡了多个因素.
- 患者表示需要持续参与护理规划,并报告了重要的治疗结果.
结论:
- 新诊断出AML的老年人经历了痛苦,影响了他们的准备和决策.
- 引起个体患者的偏好至关重要,因为没有一个因素主导决策.
- 干预措施应旨在减少痛苦,并加强患者参与治疗决策.
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