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我们的生活是一条过山车! 一项定性现象学研究,探索IBD对家庭成员的影响
Parichat Thapwong1,2, Christine Norton1, Emma Rowland1
1Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, James Clerk Maxwell Building, 57 Waterloo Road, London, United Kingdom.
Inflammatory bowel diseases
|February 28, 2024
概括
炎症性肠病 (IBD) 显著影响家庭成员,影响情绪健康和人际关系. 了解这些影响对于为导航IBD的家庭提供全面支持和改善应对策略至关重要.
科学领域:
- 胃肠病学 胃肠病学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 炎症性肠病 (IBD) 不仅给患者,也给他们的家人带来了重大挑战.
- 关于IBD对成年患者家属的具体影响的研究有限.
- 这项研究解决了有关家庭患IBD经验的关键知识差距.
研究的目的:
- 探索成年人被诊断患有IBD的家庭成员的生活经历.
- 了解IBD对家庭成员情绪,关系和日常运作的多方面的影响.
- 确定家庭成员使用的应对策略以及他们从医疗保健专业人员那里表达的需求.
主要方法:
- 解释性现象学指导了研究设计.
- 对43名参与者进行了深入的,半结构化的在线访谈 (17名患有IBD,26名家庭成员).
- 数据使用反射主题分析来分析.
主要成果:
- 三个总体主题出现了:"生活是一条过山车"",沿途有很多桥梁要过",以及"如果......我的生活会更好".
- IBD影响家庭成员的情感福祉,关系,角色,日常负担和兄弟姐妹的痛苦,具有积极和消极的影响.
- 应对策略的范围从适应性 (社交网络,开放的沟通) 到不适应性 (避免,滥用酒精). 家庭成员希望主动沟通,信息和支持.
结论:
- 胃肠炎严重影响家庭成员的情感和心理社会福祉,需要适应性和不适应性应对机制.
- 医疗保健专业人员应采用整体方法,承认并解决IBD患者及其家人面临的心理社会和情感挑战.
- 加强支持系统和沟通策略对于管理IBD的家庭至关重要.
相关概念视频
01:30Inflammatory Bowel Disease III: Diagnostic Studies and Management I-Nutritional Therapy
331
Various diagnostic tests are employed in the diagnostic process for Inflammatory Bowel Disease (IBD), particularly to differentiate between Crohn's disease and ulcerative colitis.
Diagnostic studies
A colonoscopy is the definitive screening test, distinguishing ulcerative colitis from other colon diseases with similar symptoms. During a colonoscopy test, inflamed mucosa with exudate ulcerations can be observed, and biopsies are taken to determine the histologic characteristics of the...
Diagnostic studies
A colonoscopy is the definitive screening test, distinguishing ulcerative colitis from other colon diseases with similar symptoms. During a colonoscopy test, inflamed mucosa with exudate ulcerations can be observed, and biopsies are taken to determine the histologic characteristics of the...
331
01:27Inflammatory Bowel Disease I: Ulcerative Colitis
184
Introduction
Inflammatory bowel disease, or IBD, encompasses a group of disorders characterized by chronic inflammation or ulceration of the gastrointestinal tract.
Risk Factors
The exact cause of IBD remains unclear, although it is believed to be due to a mix of genetic, environmental, microbial, and immune factors. Genetic factors are significant in determining susceptibility to IBD, with family history being a critical risk factor. Individuals with a first-degree relative who has IBD are at...
Inflammatory bowel disease, or IBD, encompasses a group of disorders characterized by chronic inflammation or ulceration of the gastrointestinal tract.
Risk Factors
The exact cause of IBD remains unclear, although it is believed to be due to a mix of genetic, environmental, microbial, and immune factors. Genetic factors are significant in determining susceptibility to IBD, with family history being a critical risk factor. Individuals with a first-degree relative who has IBD are at...
184
01:30Inflammatory Bowel Disease II: Crohn's Disease
244
Introduction
Inflammatory bowel disease, commonly known as IBD, refers to a collection of disorders that lead to persistent inflammation of the gastrointestinal tract. The two types of IBD are ulcerative colitis, which impacts the colon, and Crohn's disease, which can involve any part of the gastrointestinal segment.
Crohn's disease
Crohn's disease is a chronic, systemic inflammatory bowel disease (IBD) that predominantly affects the gastrointestinal tract. It is marked by...
Inflammatory bowel disease, commonly known as IBD, refers to a collection of disorders that lead to persistent inflammation of the gastrointestinal tract. The two types of IBD are ulcerative colitis, which impacts the colon, and Crohn's disease, which can involve any part of the gastrointestinal segment.
Crohn's disease
Crohn's disease is a chronic, systemic inflammatory bowel disease (IBD) that predominantly affects the gastrointestinal tract. It is marked by...
244
01:30Irritable Bowel Syndrome II: Clinical Features and Diagnostic Evaluation
160
Irritable Bowel Syndrome II: Clinical Features and Diagnostic Evaluation
Irritable Bowel Syndrome (IBS) is classified into subtypes based on the predominant bowel habits as determined by the Bristol Stool Form Scale (BSFS). The subtypes are:
Irritable Bowel Syndrome (IBS) is classified into subtypes based on the predominant bowel habits as determined by the Bristol Stool Form Scale (BSFS). The subtypes are:
160
01:17Chronic Bowel Disorders: Introduction
450
Chronic bowel diseases are a group of long-term conditions affecting the digestive tract, characterized by inflammation and damage to the gut lining. These conditions primarily include irritable bowel syndrome and inflammatory bowel disease.
Irritable Bowel Syndrome (IBS) is a common disorder affecting the gastrointestinal tract. The distinctive feature is recurrent abdominal pain associated with altered bowel movements, manifesting as constipation, diarrhea, or fluctuating between both. The...
Irritable Bowel Syndrome (IBS) is a common disorder affecting the gastrointestinal tract. The distinctive feature is recurrent abdominal pain associated with altered bowel movements, manifesting as constipation, diarrhea, or fluctuating between both. The...
450
01:17Assessment of the Gastrointestinal System I: Subjective Data
194
Assessing the gastrointestinal (GI) system is a complex process that begins with collecting subjective data. This data, collected through patient interviews, provides crucial insights into the patient's health history, perception patterns, and lifestyle habits, all contributing significantly to GI health.
Health History
The initial step in assessing the GI system is obtaining a comprehensive health history. This includes inquiring about the patient's history or presence of problems...
Health History
The initial step in assessing the GI system is obtaining a comprehensive health history. This includes inquiring about the patient's history or presence of problems...
194