一起治疗图雷特:以患者为中心的研究议程,重点是针对提克症的全面行为干预
Christine A Conelea1, Shannon Bennett2, Michael Himle3
1University of Minnesota.
Behavior therapy
|February 28, 2024
概括
这项研究概述了针对图雷特综合征 (TS) 和滴滴障碍 (TDs) 的以患者为中心的研究议程. 社区的投入确定了改善行为治疗及其患者可访问性的主要优先事项.
科学领域:
- 神经科学是一个神经科学.
- 行为科学 行为科学
- 临床研究 临床研究
背景情况:
- 图雷特综合征和其他滴滴障碍 (TDs) 需要有效的,易于获得的行为治疗.
- 以患者为中心的方法对于制定解决现实需求的研究优先事项至关重要.
研究的目的:
- 建立以患者为中心的研究议程,以开发和实施基于证据的对图雷特综合征和滴滴障碍的行为治疗方法.
- 通过合作的利益相关者参与,确定高优先级的研究领域.
主要方法:
- 一个多阶段的合作项目,名为"一起治疗风"进行了.
- 使用了匿名社区调查,与各种利益相关者举行的研究规划峰会,以及对峰会报告的社区反.
- 从研究人员,临床医生,患者和家属那里征求优先级.
主要成果:
- 确定了四个高优先级的研究领域:扩大治疗准入,改善治疗结果,在更广泛的护理模式中优化治疗,并评估超出严重程度的结果.
- 社区参与的参与型研究模式被发现在定义可行的研究优先事项方面是有效的.
- 协作方法成功地涉及了关键的利益相关者群体.
结论:
- 社区参与的参与性研究有效地确定了对图雷特综合征和动障碍的临床研究的明确优先事项.
- 这种方法在增强对TD和其他神经精神疾病临床研究影响方面具有显著的前景.
- 未来的研究应该专注于已识别的领域,以提高患者护理和治疗效率.
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