阿尔伯塔省用于研究的健康数据治理
Namneet Sandhu1, Sarah Whittle1, Danielle A Southern1
1Centre for Health Informatics, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
International journal of population data science
|February 29, 2024
概括
阿尔伯塔省通过精简的流程和集中式分析团队,可以有效地访问全面的健康数据进行研究. 这有助于疾病监测和流行病学研究,增强医疗服务的提供.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 流行病学 流行病学
- 医疗信息学 医疗信息学
背景情况:
- 阿尔伯塔省拥有广泛的临床和卫生服务数据,由阿尔伯塔卫生和阿尔伯塔卫生服务 (AHS) 管理.
- 阿尔伯塔省的集中式,单一支付医疗系统 (AHS) 支持一个统一的数据和分析团队,用于省级研究.
- 现有的数据基础设施支持临床,行政,疾病监测和流行病学研究.
研究的目的:
- 描述阿尔伯塔省的数据托管,治理和研究数据访问的简化流程.
- 突出阿尔伯塔省卫生服务 (AHS) 在为研究提供综合数据方面的作用.
- 概述使研究人员及时获得健康数据的机制.
主要方法:
- 由AHS从多个来源 (索赔,医院出院,药物) 创建中央数据库.
- 建立精简的研究数据访问流程:伦理审批,运营审批和法律协议.
- 卡尔加里大学和AHS为大数据需求开发高性能计算 (HPC) 基础设施.
主要成果:
- 在AHS内部,一个集中的数据和研究服务 (DRS) 团队为研究人员的数据提取和链接提供了便利.
- 精简的流程确保数据的使用,披露和保留符合阿尔伯塔省的健康信息法.
- 虽然加拿大各省的数据保护法规各不相同,但有效的数据访问机制已经实施.
结论:
- 阿尔伯塔省的综合卫生系统和数据治理为研究数据访问提供了一个高效的模型.
- 已建立的流程支持及时和安全地访问有价值的健康数据用于研究目的.
- 阿尔伯塔省的方法是利用公共卫生和研究的健康数据的有效框架.
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