数据信托,数据存储库和其他数据协作的治理和管理的基本要求
P Alison Paprica1,2,3, Monique Crichlow4, Donna Curtis Maillet5
1Institute of Health Policy, Management & Evaluation, University of Toronto, Toronto, Ontario, M5T 3M6.
International journal of population data science
|February 29, 2024
概括
更新的最低规范 (min specs) 增强了数据信任和基础设施,以确保数据的安全共享和重复使用. 这些改进的要求改善了全球组织的数据治理和管理.
科学领域:
- 数据治理和管理数据治理和管理
- 信息科学 信息科学 信息科学
- 公共卫生研究 公共卫生研究
背景情况:
- 世界各地的组织都在寻求提高个人级数据的使用,共享和重复使用,用于研究和创新.
- 在数据治理倡议中,确保数据安全和隐私至关重要.
- 最初的最低规范 (min specs) 于2020年发布,以指导数据信任的发展.
研究的目的:
- 测试和完善2020年数据信托和基础设施的最低规范 (min specs).
- 为管理敏感数据的组织提供更好的实际指导.
- 加强负责任的数据治理和管理实践.
主要方法:
- 召集了一个国际团队,主要来自加拿大和美国,以评估最小规格.
- 收集了来自23个以数据为中心的组织的数据,以了解他们对最小规格的实施情况.
- 分析结果以完善最小规格并识别支材料.
主要成果:
- 开发了一套更新的15分钟规格,分别分为五个类别:法律,治理,管理,数据用户和利益相关者和公众参与.
- 提高了最小规格语言的技术精度和完整性.
- 将更新的最小规范整合到加拿大国家标准中,包括公众参与和土著数据主权.
结论:
- 改进的最小规格显著改善了数据治理和管理的指导.
- 最小规范促进了参与组织之间的沟通和数据管理实践的比较.
- 更新的最小规格和加拿大国家标准为各种以数据为中心的举措提供了宝贵的资源.
更多相关视频
07:26Executing Complexity-Increasing Queries in Relational MySQL and NoSQL MongoDB and EXist Size-Growing ISO/EN 13606 Standardized EHR Databases
Published on: March 19, 2018
9.3K
09:00TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients
Published on: April 13, 2021
4.5K
相关概念视频
01:25Ethical Standards I
809
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
809
01:30Health Information Technology and Healthcare Information System
840
Health Information Technology (HIT)
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
840
01:29Levels of Use of a GIS
51
Geographic Information Systems (GIS) operate across three levels of application, each representing an increasing degree of complexity: data management, analysis, and prediction. These levels reflect the expanding functionality and versatility of GIS technology in handling spatial data for diverse purposes.Data ManagementAt its foundational level, GIS serves as a tool for data management, enabling the input, storage, retrieval, and organization of spatial data. This level is often employed in...
51
01:29Issues And Trends In Healthcare Delivery System
5.6K
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
5.6K
01:24Data Reporting and Recording
4.7K
Reporting and recording are crucial in data documentation. The timely, thorough, and accurate documentation of facts is essential when recording patient data. Failure to record findings during an assessment or interpretation of a problem will result in loss of information and make the patient document unreliable. The reader is left with general impressions if the information is not specific. A recording is documenting data of the individual's health information in a traceable, secure, and...
4.7K
01:25Selected Data About Geographic Locations
27
Geographic Information Systems (GIS) rely on two core types of data: spatial data and attribute data.Spatial DataSpatial data defines the physical location of features within a coordinate system, typically expressed in terms of latitude and longitude. It provides precise positioning for elements like roads, rivers, or buildings.Attribute DataAttribute data complements spatial data by adding descriptive information about these features. For example, a road's spatial data includes its start and...
27