对于以前接受紧急透析和护理人员的无证移民患者的移植体验
Katherine Rizzolo1, Nathan Rockey2, Claudia Camacho2
1Section of Nephrology, Boston University Chobanian and Avedisian School of Medicine and Boston Medical Center, Boston, Massachusetts.
JAMA network open
|February 29, 2024
概括
患有功能衰竭的无证移民往往缺乏移植教育和支持. 同行支持和更好的教育机会可以为这个弱势群体促进脏移植.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 移植 移植 移植 移植
- 医疗保健服务研究 医疗服务研究
背景情况:
- 无证移民身份和功能衰竭的个人面临移植的重大障碍,主要是由于缺乏医疗保险.
- 对于这群人对于脏移植的经验和观点的了解有限,特别是那些依赖紧急血液透析的人.
研究的目的:
- 检查以前使用紧急血液透析的无证移民身份的移植受体的综合经验.
- 探索这些移植接收者的家庭护理人员的观点.
主要方法:
- 一项定性研究,采用半结构化的1对1面试,对移植接受者及其主要护理人员进行面试.
- 采访是在2022年5月至2023年3月期间在科罗拉多州丹佛进行的,采访用英语或西班牙语进行.
- 专题分析被用来从翻译和取消身份的采访成绩单中确定主题和子主题.
主要成果:
- 六个关键主题出现了:在紧急血液透析期间的教育有限,有计划透析的移植希望,移植教育和保险过渡后的挑战,评估期间的不确定性,移植后的工作和心理健康的改善,以及像自我倡导和同行支持这样的移植促进者.
- 参与者报告说,透析诊所的移植教育不足,以及在移植评估和等待列表过程中遇到困难.
- 同行支持在教育和追求移植的动机中起到了至关重要的作用.
结论:
- 以前接受紧急透析的无证移民身份的个人面临着从移植教育和获取中被排除在外.
- 对此种人群来说,在移植过程中,同行支持对于教育和激励至关重要.
- 这些发现可以改善无证功能衰竭患者的支持和教育机会,特别是当有计划的透析服务无法提供时.
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