严重疾病的不确定性:国家跨学科的共识,以确定临床研究的优先事项
Simon N Etkind1,2, Stephen Barclay1, Anna Spathis1,2
1Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, United Kingdom.
PloS one
|February 29, 2024
概括
管理严重疾病的不确定性是关键的研究重点. 未来的研究应侧重于沟通和应对策略,以改善患者和护理人员的体验.
科学领域:
- 老年医学 老年医学
- 抚慰性护理是一种缓解性护理.
- 关键护理医学 关键护理医学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 严重疾病的特点是患者,家庭和医疗保健专业人员的重大不确定性.
- 现有的证据缺口阻碍了严重疾病不确定性有效管理.
- 老年人特别容易受到严重疾病期间不确定性带来的挑战.
研究的目的:
- 确定和优先考虑与严重疾病的不确定性相关的研究领域.
- 将未来的研究与受不确定性影响的个体的需求保持一致.
- 提高研究效率,减少重复工作.
主要方法:
- 一个快速优先级工作坊,涉及五个重点小组.
- 参与者包括医疗保健专业人员 (老年病,息护理,重症监护),研究人员,患者/护理人员代表和政策制定者.
- 数据分析包括排名的描述性统计数据和成绩单的定性框架分析.
主要成果:
- 不确定性传播被确定为最高的研究优先事项.
- 随后的优先事项包括应对不确定性,医疗保健专业教育,优化临床方法和探索不确定性的经验.
- 专注于最佳管理不确定性的研究获得了更高的优先级,而不是研究其经验或影响.
结论:
- 联合制作的研究重点突出了严重疾病中管理不确定性的关键证据缺口.
- 优化管理不确定性是减少痛苦和改善护理的最紧迫问题.
- 优先考虑对不确定性管理的研究可以解锁决策,增强疾病和护理经验.
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