有或没有身体残疾和慢性疾病的青少年的参与:全面的概念化
Marie Bernard1, Laura Hoffmann1,2, Matthias Richter1,2
1Institute of Medical Sociology (IMS), Interdisciplinary Center for Health Sciences, Medical Faculty, Martin Luther University, Halle-Wittenberg, Germany.
Child: care, health and development
|March 1, 2024
概括
参与康复是关键目标,但其概念需要改进. 本研究将参与定义为一个多维构造,涉及客观出席和主观参与,这对于有效的康复评估至关重要.
科学领域:
- 康复医学 康复医学 康复医学
- 关于残疾人的研究.
- 社会科学 社会科学 社会科学
背景情况:
- 国际功能和残疾分类 (ICF) 于2001年将参与确定为首要康复目标.
- 目前缺乏对康复环境中的参与的全面理解,特别是在德语地区.
研究的目的:
- 完善和扩展现有的参与康复的概念.
- 发展对有和没有障碍的青少年参与的更细致的理解.
主要方法:
- 与患有慢性疾病或身体残疾的青少年进行半结构化采访.
- 与家长和专家举行了重点小组,以收集有关参与的不同观点.
主要成果:
- 参与是一种具有客观 (出席) 和主观 (满意度,参与) 维度的社会嵌入式构造.
- 这些维度表现在与青少年相关的各种生活领域.
- 生活领域的主观相关性作为评估参与的关键权重因素.
结论:
- 这种精细的概念与国际模式保持一致,并强调参与的多维性质.
- 这种增强的理解对于创建有效的评估工具来衡量与参与相关的康复结果至关重要.
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