父母对儿科炎性肠病的看法:解开担忧,并研究参与意愿
Adi Eindor-Abarbanel1, Noa Pinchevski1, Tzippora Shalem1
1Pediatric Gastroenterology, Hepatology and Nutrition Division, Shamir Medical Center, Zeriffin, Israel.
Journal of pediatric gastroenterology and nutrition
|March 1, 2024
概括
患有炎症性肠病 (IBD) 的孩子的父母更担心药物副作用,而不是疾病症状. 他们对涉及新药的临床试验犹不决,但对营养和补充疗法的研究持开放态度.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 临床试验招聘工作人员
- 患者报告的结果.
背景情况:
- 父母对儿科炎性肠病 (IBD) 治疗的担忧早于生物时代.
- 现有的文献缺乏父母对儿科IBD临床研究的看法.
- 这项研究解决了了解家长担忧和愿意参与儿科IBD研究的差距.
研究的目的:
- 探索家长对儿科IBD及其治疗的担忧.
- 确定影响这些问题的因素.
- 评估家长对孩子参与临床研究的意愿.
主要方法:
- 匿名问卷通过社交媒体分发给儿科IBD患者的家长.
- 该调查评估了参与临床研究的意愿,一些麻烦的疾病方面以及连贯感 (SOC).
主要成果:
- 对药物的副作用 (80.04%) 的担忧超过了对疾病症状 (73.47%) 的担忧.
- 较低的SOC,有限的医疗接入,以及年龄较大的儿童在诊断时的年龄与更高的疾病影响担忧相关.
- 父母不愿意接受新药试验 (54.5%),但更喜欢营养 (84.2%) 和补充医学研究 (91.1%).
结论:
- 儿科IBD患者的家长对药物的副作用表现出严重的担忧.
- 父母对于涉及新药的临床研究存在不情愿.
- 对于专注于营养和补充疗法的研究,观察到父母接受度更高.
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