系统性硬化症患者对社会角色和活动的满意度相关的因素:一种以患者为中心的干预网络 (SPIN) 队列跨截面研究
Tiffany Dal Santo1,2, Danielle Rice3,4, Marie-Eve Carrier1
1Lady Davis Institute for Medical Research, Montreal, Québec, Canada.
RMD open
|March 1, 2024
概括
与一般人群相比,系统性硬化症 (SSc) 患者对社会角色和活动的满意度略低. 影响这一点的关键因素包括教育,种族,地理位置,BMI和特定的SSc并发症,如胃肠道问题和肺部疾病.
科学领域:
- 类风湿病学 类风湿病学
- 患者报告的结果
- 健康差异 在健康上的差异
背景情况:
- 系统性硬化症 (SSc) 显著影响患者的生活质量,影响他们的社会角色和日常活动.
- 了解影响社会满意度的因素对于 SSc 管理中的有针对性的干预至关重要.
研究的目的:
- 在一个大型的跨国SSc队列中,将社会角色和活动满意度与一般人口规范进行比较.
- 确定与SSc患者满意度相关的社会人口统计学,生活方式和SSc特定疾病因素.
主要方法:
- 采用了以患者为中心的干预网络队列的数据,其中包括2385名参与者.
- 雇员患者报告结果信息系统版本2对社会角色和活动的满意度问卷.
- 进行多变量回归分析以确定与各种因素的关联.
主要成果:
- 在SSc患者中,平均满意度T-score (48.1) 略低于美国普通人口 (50).
- 独立相关的因素包括高等教育,非白人种族,居住在加拿大/英国,更高的BMI,胃肠道干扰,数字,关节收缩,间歇性肺部疾病,肺动脉高血压,类风湿性关节炎和Sjogren综合征.
结论:
- 与普通人群相比,系统性硬化症患者对社会角色和活动的满意度略低.
- 在SSc.中,满意度受到社会人口学特征和疾病特异性因素的复杂相互作用的显著影响.
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