在儿童创伤性脑损伤后的头2年中,未满足的医疗保健需求
Hilde Margrete Dahl1, Ingvil Laberg Holthe2, Nada Andelic3
1Dept. of Clinical Neurosciences for Children, Section for Child Neurology, Oslo University Hospital, Oslo, Norway; Institute of Clinical Medicine, Faculty of Medicine, University of Oslo, Oslo, Norway.
概括
患有创伤性脑损伤 (TBI) 的儿童经常经历持久的症状,影响学校和社会生活. 医疗和教育服务的未满足需求是常见的,影响了他们的生活质量.
科学领域:
- 儿科神经学 儿科神经学
- 神经康复疗法 神经康复疗法
- 儿童心理学 儿童心理学
背景情况:
- 关于儿童创伤性脑损伤 (TBI) 幸存者获得医疗保健和教育服务的研究有限.
- 了解创伤后的长期症状轨迹和服务需求对于有效的干预至关重要.
研究的目的:
- 调查儿童和青少年在TBI后两年内症状的过程.
- 确定症状是否表明需要医疗保健和/或教育服务.
- 评估未满足需求的程度及其与与健康相关的生活质量相关的关系.
主要方法:
- 在奥斯陆大学医院进行的前性队列研究 (2015-2018).
- 包括49名儿童患者 (1-15岁) 住院治疗TBI.
- 在6个月和24个月后进行随访,通过临床评估,患者和家长报告评估症状和需求.
主要成果:
- 25%的患者在TBI后24个月有未满足的需求.
- 这些患者报告了持续的认知和情绪症状,影响了学校和社会互动.
- 未满足的需求与较低的健康相关生活质量有关.
结论:
- 儿童TBI幸存者可能会经历长期的症状负担,影响日常功能.
- 很大一部分人面临着未得到满足的服务需求,这影响了他们的生活质量.
- 针对性的医疗保健和教育服务对于应对这些长期挑战至关重要.
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