一个案例研究,使用基于社区的共识方法,在脊髓损伤网络中促进共享决策
Emily E Giroux1,2, Peter Athanasopoulos3, Shane N Sweet4
1Centre for Health Behaviour Change, School of Health and Exercise Sciences, University of British Columbia Okanagan, Kelowna, BC, Canada.
Frontiers in rehabilitation sciences
|March 4, 2024
概括
在研究和政策中与脊髓损伤 (SCI) 患者合作,确保相关性. 一个以社区为基础的共识练习成功告知了战略规划,并导致SCI社区的护理和倡导有形改善.
科学领域:
- 基于社区的参与式研究.
- 卫生政策发展卫生政策发展
- 脊髓损伤 (SCI) 倡导活动
背景情况:
- 脊髓损伤 (SCI) 研究和政策决策往往排除SCI社区,减少其相关性和影响.
- 共识方法提供了一个结构化的方法,以促进研究和政策的共同决策.
研究的目的:
- 描述研究人员和安大略省SCI联盟之间的合作方式,共同开发基于社区的共识.
- 为了促进共同决策,制定安大略省SCI联盟的战略计划.
- 识别成功,挑战和从社区层面的共识演习中吸取的经验教训.
主要方法:
- 一个基于社区的共识练习,涉及两个修改后的Delphi调查和一个面对面的撤退.
- 将调查1传播给超过2500名SCI社区成员,收到374个回复.
- 一个与73名与会者聚会,包括SCI患者,临床医生和研究人员,讨论调查结果和在方便小组中工作.
主要成果:
- 安大略省SCI联盟根据综合反实施了变化,包括改善初级保健准入,创伤护理策略和宣传活动,以公开覆盖导管.
- 采访显示了五个共同构建的主题:包容性,多样性,公平性和可访问性;伙伴关系;设计考虑;沟通中的透明度和清晰度;和可持续性.
- 该研究表明,社区层面的共识练习与配资应得的群体的可行性.
结论:
- 基于社区的共识练习是有效的共享决策在脊髓损伤 (SCI) 研究和政策.
- 本案例研究为与多样化的知识用户进行包容性和有效的共识练习提供了指导.
- 研究人员和社区组织之间的伙伴关系对于制定相关和有影响力的SCI战略至关重要.
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