国家NHS数据选择退出:健康数据研究的趋势和潜在后果
John Tazare1, Alasdair D Henderson1, Jessica Morley2
1Faculty of Epidemiology and Population Health, London School of Hygiene and Tropical Medicine, London, United Kingdom.
BJGP open
|March 4, 2024
概括
在2021年,NHS数据退出激增,影响了健康研究. 根据年龄,性别和地区的选择退出率增加可能会扭曲健康数据分析和政策决策.
科学领域:
- 医疗信息学 医疗信息学
- 公共卫生研究 公共卫生研究
- 数据治理数据治理
背景情况:
- 国民健康服务 (NHS) 数据选择退出系统允许个人控制其健康数据的使用超出直接护理范围.
- 在2021年,由于政府提出中央集中的初级保健记录数据库的建议,选择退出发生了显著的增长.
研究的目的:
- 分析2021年英格兰NHS国家数据选择退出的趋势和人口变化.
- 评估这些选择退出对健康数据研究的潜在影响.
主要方法:
- 对英国公开可用的选择退出数据的描述性分析.
- 根据年龄,性别和地理区域对选择退出趋势的检查.
- 使用假设研究探索统计和流行病学影响.
主要成果:
- 在2021年5月至6月期间,记录了超过130万次选择退出,使全国的选择退出率从2.77%增加到4.97%.
- 选择退出率在女性 (83%) 和男性 (76%) 中显著增加,在40-49岁的年龄组中相对增长最高.
- 关键的研究影响包括减少样本大小和对健康事件频率和关联的扭曲测量.
结论:
- 选择退出率在人口群体和地区之间呈现差异,影响研究通用性.
- 这些变化对研究成果的确切影响仍然无法量化.
- 未来的数据选择退出策略必须考虑潜在的研究和卫生政策影响.
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