优先设定:多发性硬化症中的女性健康主题
Lindsay Ross1, Marcia Finlayson2, Maria Pia Amato3,4
1Department of Neurology, Mellen Center for Multiple Sclerosis Treatment and Research, Neurological Institute, Cleveland Clinic, Cleveland, OH, United States.
Frontiers in neurology
|March 5, 2024
概括
确定了患有多发性硬化症 (MS) 的女性的研究优先事项,重点关注更年期,性功能,怀孕,妇科癌症,荷尔蒙和育儿. 这种合作努力指导了未来的MS女性健康研究.
科学领域:
- 神经学 神经学
- 妇女健康 妇女健康
- 公共卫生 公共卫生
背景情况:
- 现有的关于多发性硬化症 (MS) 妇女健康的研究主要涉及怀孕和性功能障碍.
- 在患有多发性硬化症的妇女中,关于更年期,避孕和妇科癌症存在重大知识差距.
- 这些知识缺口对MS患者和其他利益相关者的相对重要性尚不清楚.
研究的目的:
- 在多发性硬化症 (MS) 背景下共同确定妇女健康的研究重点.
- 让各种各样的合作伙伴,包括多发性硬化症患者,医疗保健提供者,研究人员和倡导团体,参与制定未来的研究议程.
主要方法:
- 采用了三个步骤的全球参与过程,包括调查和重点小组.
- 最初的调查确定了优先考虑的广泛研究主题,这些主题与MS中妇女健康有关.
- 专注小组制定了具体的研究问题,然后通过最后的调查来优先考虑.
主要成果:
- 更年期,性功能障碍,怀孕,妇科癌症/查,荷尔蒙和育儿成为关键研究领域.
- 在这些主题中产生了80个潜在的研究问题.
- 具体的高优先级问题包括更年期对MS的影响,管理性亲密关系,MS治疗对儿童的长期影响,妇科癌症风险,MS症状的激素治疗,以及由于MS疲劳的育儿挑战.
结论:
- 一个协作过程成功地确定了多发性硬化症 (MS) 妇女健康问题的研究重点.
- 未来的研究工作应该与这些既定优先事项保持一致,并根据这些优先事项进行监测.
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