在家庭背景下处理纤维肌痛:定性描述研究
Luz de Myotanh Vázquez Canales1,2, Inmaculada Pereiró Berenguer3, Eduardo Aguilar García-Iturrospe4,5,6,7
1Primary Care Center Serreria, Community Health Center Serrería 1, Valencia, Spain.
Scandinavian journal of primary health care
|March 6, 2024
概括
纤维肌痛 (FM) 严重影响家庭,影响财务,人际关系和照顾者的角色. 更好的理解和支持可以减轻这些挑战的人生活在FM.
科学领域:
- 社会科学 社会科学 社会科学
- 健康科学 卫生科学 卫生科学
- 定性研究是指质量研究.
背景情况:
- 纤维肌痛 (FM) 是一种普遍的慢性疾病,在全球范围内影响1.78%,主要是女性.
- 缺乏客观的诊断工具使得FM成为一个复杂的,经常被误解的疾病.
- FM显著影响患者的生活和他们的直接社会环境.
研究的目的:
- 探索家庭成员对纤维肌痛对他们的生活的影响的观点.
- 了解亲属照顾FM患者的经历.
- 为了确定家庭管理一个有纤维肌痛的成员所面临的挑战.
主要方法:
- 使用7个重点小组与41名家庭成员进行的定性描述性研究.
- 从西班牙的农村和城市卫生中心收集的数据.
- 使用NVivo 12软件进行的感应主题语义分析.
主要成果:
- 出现了四个主要主题:纤维肌痛的性质,照顾者的角色,对性亲密性的影响和经济后果.
- 人们对纤维肌痛的看法各不相同,从真正的疾病到发明.
- 家庭成员经历了角色的转变和困难,特别是配偶和孩子.
结论:
- 亲属之间对纤维肌痛的更好理解至关重要.
- 接受不断变化的家庭角色可以改善家庭动态.
- 改善患者的工作条件可能会减轻家庭负担.
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