系统性红斑狼患者对疾病管理和生物治疗的知识,态度和实践
Xiaojing Liu1, You Song1, Limin Wan1
1Department of Rheumatology and Immunology, Union Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, People's Republic of China.
Journal of multidisciplinary healthcare
|March 8, 2024
概括
系统性红斑狼 (SLE) 患者在疾病管理和生物治疗方面表现出缺乏知识,负面态度和不充分的做法. 改善患者教育对于改善SLE的结果至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 患者教育 患者教育
- 健康心理学 心理健康心理学
背景情况:
- 系统性红斑狼 (SLE) 是一种慢性自身免疫性疾病,需要患者积极参与管理.
- 了解患者的知识,态度和实践 (KAP) 对有效的疾病控制和治疗坚持至关重要.
- 生物疗法提供了新的治疗途径,但需要知情的患者参与.
研究的目的:
- 评估SLE患者关于疾病管理的当前知识,态度和实践.
- 评估SLE患者对生物治疗的理解和观点.
- 确定影响KAP的因素,以改善SLE患者的护理.
主要方法:
- 进行了一项涉及463名SLE患者的横截面研究.
- 通过自行设计的调查问卷收集的数据,评估人口统计信息和KAP.
- 路径分析用于检查知识,态度和实践之间的关系.
主要成果:
- 平均知识分数为8.52/11,态度分数为39.40/55,实践分数为27.10/40.
- 在知识和态度之间发现了显著的积极关联 (路径系数=0.455,p<0.001).
- 在知识和实践之间发现了显著的积极关联 (路径系数=0.709,p<0.001).
结论:
- 患有SLE的患者在疾病管理方面表现出缺乏知识,负面态度和不良实践.
- 知识显著影响SLE患者的态度和做法.
- 加强患者知识的干预措施对于改善SLE管理的态度和做法至关重要.
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