巴伐利亚的精神瘤自助小组:当前情况和改进建议
Marietta Lieb1, Martina Madl1, Martin Vogelhuber2
1Department of Psychosomatic Medicine and Psychotherapy, Friedrich-Alexander-University Erlangen-Nürnberg (FAU), Erlangen, Germany.
Oncology research and treatment
|March 10, 2024
概括
巴伐利亚的自助团体 (SHG) 需要更好的精神瘤学支持和资源,特别是对于移民. 改善信息获取和与癌症中心的沟通对于患者护理至关重要.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者支持 患者支持
背景情况:
- 自助团体 (SHG) 是德国医疗保健系统的组成部分,通过与癌症中心的合作,加强患者参与癌症护理.
- 调查巴伐利亚自治医疗组的现状和未满足需求对于改善患者支持和护理提供至关重要.
研究的目的:
- 评估巴伐利亚的精神瘤自助小组的当前活动和需求.
- 评估自助团队和癌症中心之间的合作,包括COVID-19大流行期间的适应.
- 确定在SHG服务中纳入移民的具体需求.
主要方法:
- 一个横截面的在线调查被分发给150个巴伐利亚精神瘤SHGs.
- 该调查评估了SHG的活动,需求,与癌症中心的合作,流行病适应和移民包容.
- 分析了39个参与的自助小组的数据.
主要成果:
- 一半的自营小组报告说,在COVID-19大流行期间,会议减少了,许多人转向了在线格式.
- 超过一半的自助团队发现精神瘤服务由于信息不足,可用性和等待时间长而不能令人满意.
- 移民服务有限,只有13.6%的自助团队和16.2%的癌症中心提供服务.
结论:
- 巴伐利亚自治医疗小组需要增强的患者指南,全面的信息和可访问的精神瘤服务,以提高患者满意度.
- 未来的护理策略应优先考虑解决无人机组未满足的需求,特别是对于移民人口的精神瘤支持和服务.
- 需要进一步的研究,以详细说明在SHG背景下移民的具体需求.
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